If I have little or no respect anymore re the NHS or my ‘GP’ it is the more than apparent at times attempts made to discredit me personally re my health and in consequence my
well being.

What I have seen over the last and take note here 10 years has been VERY revealing.
The last 3 years, shocking.

I already had motor neurone issues.. Turn off a light leave me in pitch black darkness and I would fall. Just drop.. as though my sensory system was switched off.?!

Balance was affected.. sometimes stumbling into things or simply finding it hard to walk.
I remember being watched from a car by someone who had come to pick me up from a coach station as I left the bus walked to wards them only to collapse.. NOT the NOR would that be the first time.

Pick up a plate.. or go to as it would end up thrown across the room, involuntary muscle spasm.  I found I could not raise my right arm without a lot of discomfort.. almost as though the joint had seized..

Given a steroid injection that helped but without knowing it at the time, that was VERY relevant. I did NOT feel the level of pain or the puncture of the needle into my skin my actual joint bar the needle scraping bone?

Breathing problems.. ask me to hold my breath and I would pass out..

I had already noted the issues I was having and yes genuinely worried.

I had lost TWO of my family to HUNTINGTONS CHOREA. NO way out re that ..
No known cure.  So yes I was worried.

The GP did NOT do anything re testing for that until 2024 when it was tested for by TAMESIDE and not at the request of the GP.

It would be  Dec 2022 when I had my first seriously bad fall - going to the bus stop I saw the bus move past and quickened my pace only to fall, no sense of it, nothing as I fell hit the gravel pavement (sidewalk) with such a force that ominous thud  that saw my face bruised and bleeding.

Call an ambulance.... Ah a trip to A and E.. uhh no thanks..  I stopped them for me instead to have help to the bus stop board the bus and head to Boots whose staff helped me clean my wounds, stop the bleeding looked far worse with all that blood..

Got home and reassessed. The facial bruising and swelling was bad, yes the characteristic black eye.. Bridge of my nose.. forehead. Took weeks to get back to some semblance of normality..

Then it hit me.. not the pavement this time but my body feeling weaker. hard to stand.
Some instability re my mobility? The walking into things, the difficulty with maintaining balance?

The the fall indoors where it took me nearly an hour to be able to sit up.. using some boxes to step up to a level I could eventually pull myself up and onto my feet to stand..

The realisation then that there was something going on which was decidedly NOT right.
Would be proved all too true as I now found in January 2023 on the floor after losing a plate of food, me on the floor barely able to move..

Almost paralysed.. I found I could not move my body loss of arms, legs.. I finally slumped back managed to turn on my side and went to sleep. FOR some hours .. until on waking.

Finally managed to remove the various ‘cushions’ from the sofa to allow me several hours later to shift onto the sofa.. then able to finally stand replace the ’cushions’ .

Still shocked at all that had happened I managed to gain some recovery enough to clean up the spilled food et and sort out the necessaries re my hygiene before a meal that I finally got to eat,.

What to do.. I now had realized the truth.. what I was now experiencing was not good not good at all and to think I could find a solution without involving others was a fallacy.

The GP.. but first to do some research..
I drew the conclusion my body was reacting badly and that my MUSCLES were WEAK SERIOUSLY WEAK...

no STRENGTH in my arms.. hands.. legs .. POLYMYOSITIS? The symptoms were there but was my suspicions right?

Finally get through to call out and make it clear via email etc of what I was experiencing.. eventually the GP arrives.. sits down and we talk it through..

An assessment at A and E No need to rush.. will put you on the emergency 4 hour standby.. Which means Emergency service have up to four hour before sending out an ambulance..

Finally 4 hours later.. I get two males turn up to spend time writing up their dockets deciding if I should go to A and E finally taking note of the GP referral I am loaded onto the Ambulance to have my blood pressure taken.

NOT indoors before leaving to board the ambulance.. where my blood pressure is

240 / 120 and I have TACHYCARDIA..

That I have to admit was a shock to me. but they have now come to the conclusion never mind eh., just hypertension soon have that sorted eh?
ME: I know too dammed well it is far more than that but I still have to listen to the babble.. before we reach A and E oh my..

Join the queue .. they go off leave me in a wheel chair.. to return a little while later as I decide it is time to let that duo that aint Batman and Robin ..  know I am an ex military nurse who has also worked in MAIN CITY busy  A and E department for over 4 years on permanent nights..

THIS was the worst I have ever seen.. the numbers the ominous drag.. you know that one in a queue the next mentality that has now taken over.. Though I do sympathise I know they often get ones who should not be in A and E.. and some genuine time wasters BUT

I digress.. I finally end up in a room on my own waiting whilst they go off to have a TRIAGE with ? Someone who decides an ECG might be a good idea.. machine me and the ECG completed he rushes off no surprises there as I know I have TACHYCARDIA..

Bloods ah the first set of bloods.. usual hospital banter and of course the phlebotomist arrives .. takes the bloods and off she goes..  Meanwhile time is ticking by.. over two hours. maybe even three..

Doctor arrives .. examination.. discussion.. assessment and leaves....
Admission required for further investigation.. acceptable understood.

Another ECG.. no surprises there.. just to confirm that the readings were the ones that were not so good NOT SO GOOD rather than an error.. Understandable.. OK done gone..

4 hours.. finally get moved to a corridor on a trolley to wait admission to a ward.
Ah bloods more bloods the panic is setting in as it finally hits home..

CK levels are over 11,000 and will rise.. to over 30,000

So not only TACHYCARDIA.. BUT SERIOUSLY HIGH CK LEVELS..

I mutter thankyou to the GP who had me wait over 4 hours for an ambulance,
to the NHS  for the wait in  A and E of over 4 hours and a further 2 hours in the corridor waiting for admission to a ward at least entertained by the constant need to take blood and vanish in a flurry.. or was it hurry...

As they say thats all folks.. well for now... more coming up..