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June 2024 Journal.
Sat 22nd June 2024
Chronic fatigue!! Major NOT good! It’s been a sreal struggle to maintain some ‘awareness’ without feeling too tired, too lethargic, to do anything other than sleep! (11 hours!). I suspect Monday was a precursor to all of this.
Some of tbe worst so far, a major fight to keep from falling asleep. A NIGHTMARE. Sleeping for more than 10 hours is NOT good! I’m trying to work on some possible solutions Caffeine??
Blood pressure IS LOW BP a contributory factor to the chronic lethargy??
10pm 139/80/81 135/90/85
138/85/93 137/86/87
I’m going to let my BP rise and see what happens. I’d sooner it was higher and losing some of the Chrionic fatigue than lower !! We shall see..
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Tues 18th June 2024
Chronic fatigue!! Major NOT good! It’s been a sreal struggle to maintain some ‘awareness’ without feeling too tired, too lethargic, to do anything other than sleep! (11 hours!). I suspect Monday was a precursor to all of this.
The trip to the appointment, re bloods taken by the ‘Grail’ team; (The NHS (UK)-Galleri trial is looking into the use of a new blood test to see if it can help the NHS to detect cancer early when used alongside existing cancer screening.) was tiring and I I knew, would have some real time, not so good after effects.
My digestive system, was one of the issues that required me to top on antacids with an over reactive gut / stomach. A lot of discomfort that lasted for several hours. Regugitation of food and generally unpleasant.
Processed ready meal did NOT help. Quick, convenient but a dsaster. NOT doing that again. Seriously; heavily prolcessed foods are a nightmare. Usually I do NOT have nor will entertain them.
I have been having eyesight problems. Sudden impaired visual acuity issues. Most disturbing as it can happen suddenly, almost tunnel vision with the edges of that ‘tunnel’ like something from a ‘kaleidoscope’.
I have a good optician’s services, with (Boots (UK) providing the service) who responded very quickly allowing me to visit them for an ‘emergency’ consultation, at such short notice.
Several factors have to be taken into consideration:
Cataracts, retinal detachment and many other possible issues - blood pressure, drug related ie the medicines I am currently taking to the adverse effects health and well being wise. Most of all the FACT that what I have been experiencing vision wise has been getting worse!
NOTE : ALL of my eye testing, examinations are up to date and include extensive scans ++
The examination was thorough and results good ! HOWEVER! A very interesting aspect of the final results and my experiences taken into account ?
The conclusion ? Not something I had taken into consideration as I have NOT suffered from that in the past; ever! Migraine related.
Migraine eye problems also known as ocular, ophthalmic, or monocular migraines.. They are usually harmless and short-lived, but they can be scary and interfere with daily activities. Migraines can also cause light sensitivity and pain behind the eyes.
MY experiences: PAIN ? No. Visual disturbance YES, short lived on average YES. More unnerving than scary. HOWEVER enough for me to seek professional advice. NOW that I know what to expect and why; I can react accordingly.
Overall, lower abdomen discomfort remains a nuisance. Bleeding from the bowel?
Neck and upper spine cracking.. not pleasant to move my head.
Chest is tight.. breathing remains problematic.
Stomach and digestive issues continue to be more annyoying than anything else. Cursing at the stupidity on my part re that instant processed meal and its prolonged after effects! NOT EVER doing that again!! (I did have that, with quality ‘frozen’ fresh mixed veg and boled potatoes.) .
THE PROCESSED INSTANT MEAL WAS WHAT CONTINUOSLY REGURGITATED and agitaed my gut!! Acid reflux etc !! I’ve managed to get that under control only for something like that to trigger it again!
The study of 200,000 UK adults found that higher consumption of ultra-processed foods may be linked to an increased risk of developing cancer overall, and specifically ovarian and brain cancers.
Ultra-processed food is a term for foods with ingredients not used in home cooking, such as chemicals, colourings and sweeteners. …
10am 162/83/83 152/80/88
167/93/87 166/92/87
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Sun 16th June 2024
Managed to get out and have a meal BUT about ten minutes later ..
Eyesight problems. Some (ocassional) ‘fractal’ vision. I’m going to have my optician look again my eyes.. Recently it WAS noted that I will be experiencing problem re the RIGHT eye, as this is unstable.
!! 180/108/ 88 185/110/ 91 (mild exercise)
(30 mins later) 148/87/77 165/83/79
Notice the pulse change is slight! ‘Recovery’ is quite good.
10am 156/94/80 149/101/83
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Fri 14th June 2024
Taking things VERY easy at the moment. Lot going on re my health and well being. NOT pleasant re my abdo. my issues re sight, momentary visual acuity issues.
179/ 105/86 168/111/ 87
!!
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Tues 11th June 2024
Chest tightness remains a nuisance. HOWEVER
Lower abdomen is also tight and sporadic spasms of pain.- This is definitely causing some concern. I will have to keep monitoring this.
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SUN 9th June 2024
Now using ‘trimovate cream’. The area re the infection...
The scabs have gone FLAT, slowly drrying out.
173/107/ 72 181/100/ 74
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Fri 7th June 2024
The treatment with the salt washes AND Dermovate appear to be easing my original outbreak. Actual raised ‘spots’ are flatter, heads appear ‘sliced’ with a thin scab. I suspect there will be scarring BUT ! Some tighness of the skin over the infected area as the ‘scabs’ apoear to want to dry out and flake. I will post some more pics later.
165/ 96/ 86 168/ 96/ 89
166/94/98 162/97/ 97
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Tues 4th June 2024
The treatment with the salt washes AND Dermovate appear to be easing my original outbreak. Actual raised ‘spots’ are flatter, heads appear ‘sliced’ with a thin scab. I suspect there will be scarring BUT !
I will try to update the photos with some newer ones to illustrate what I am talking about.
One of my biggest isues. is the discomfort. from the exposed infected areas. I would say that that is due in part to the reduction in the raised infected skin now going ‘tight’.
8am 166/ 90/ 91 171/ 90/ 86
2am 173/ 83/ 97 171/ 87/ 99
The salt washes AND dermovate cream appear to be helping me. The former heavier scab spots are now having a very thin top layer to them. I fyou place your nail next to some of them you can feel the edges and re some, a sense you could peel that layer; NOT a good idea! (I will try and post some updated pics)
I’ve keept the area as dry as possible bar the application of the DERMOVATE cream.
Still a lot of discomfort re sitting. Helped in part by pain killers, (DO remember the area is about 40% NUMB which means that are is a LOT MORE painful than I am suffering with) BUT the residual pain level is helped by re Paracetamol 500mgs twice daily.
Chest discomfrort remains unchanged. I’m being VERY careful re left leg / cramp / some swelling. I don’t want more blood clots OR the risks from those including the added risks re ending up with a STROKE.
Asemding, transverse and descending colon remain painful. Some definite spotting of blood (FRESH).
Prednisilone is at 6mgs per day. Other meds as shown CLICK HERE
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Sat 1st June 2024
4pm 194/ 109/ 78 188/ 101/ 71
8am 179/ 98/ 77 179/ 102/ 80
MAY 2024:
A real nuisance, with this breakout, Shingles.
Left thigh, underneath 2 patches / left side of thigh 1 large area, outer area / lower back and mainly the left side.buttock;.all as per the picture.
Sore, itching, some swelling. Treatment with Dermovate cream has relieved some of the swelling. The cream has broken down some of the actual skin to leave some exposed ulceration. Sore, sensitive. A lot of discomfort ie sitting down etc.
4pm 179/ 105/ 81 189/ 110/ 86
8am 178/ 98/ 86 165/ 92/ 74
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