When you still have those so called professionals who are still quick to make decisions regarding your health and well being based on ? how about the lack of critical ie BLOOD results...

and so much more..

It is no surprise to me that given my actual health and well being vs their FAILURE to deliver RESULTS from so many scans, tests. Ah yes, ASSUMPTIONS. In fact it is truly shocking how far off the truth in so many respects certain as said, so called medical professionals are.
Made worse as they chose to ignore certain clear cut factors that I have over the last twelve months experienced, ENDURED.
If my situation over the last few months has worsened it has been so much effort on my part to attempt to maintain a level that is and has been shown constantly to be given my ACTUAL medical well being an achievement in itself.
I am getting weaker. The fight on my part has gotten more intense.
My overall motivity and mobility are being compromised by so many factors especially a large number that some chose as I have said, to ignore. One of the most damaging is my Necrotizing Myopathy Click here 
Those who do not challenge me on this NOR will stand and be counted re declaring that I am NOT right with that diagnosis. NO surprises there.
Instead they hide behind so called viirtually NON existent test results, OR chose to cherry pick the ones they do use in their ASSUMPTIONS.
I said before and repeat again, it is NOT what they do tell you, but what they chose NOT to tell you and know that they can get away with a kind of arrogance.
Thus this month I am going to go over EVER aspect of what I KNOW, that I am experiencing, physically plus what they have clearly chosen to ignore, made excuses to relieve themselves of taking certain medical issues into account simply because its not their ie area of expertise.
FACTORS that directly or indirectly WILL affect issues within their area of so called ‘expertise’.
I am also going to summarise the ENTIRE YEAR re 2023 MONTH by month to highlight certain healt and well being factors that caused me crippling pain, trashed my immune system, left me at the mercy of so called medical professionals to make middle of the road, tunnel vision decisions.
I’ll even include photocopies of correspondence to illustrate how some correspondence contradicts certain of those decisions, statements. It IS shocking!

From January 2023 I’ve learned a helluva lot from so called ‘health care professionals’ to their sundry workers in some instances WORSE than the old ‘auxillariary nurses’. I remember going back decades to when the NHS was worth being proud of; now its no longer a case of being taken for a ride.. the NHS is a ‘train wreck’.
Over 13 months I have had so many tests, trials and tribulatiions that one might be inclined to think that I’ve been extremely lucky... Cept for one TRUTH.
Those tests, scans mean NOTHING if the results are NOT forthcoming, the tests are botched and or those who should be telling you the ACCURATE resuls fail to do so because the results are NOT there.. or are botched. FACT.
I pointed out from the beginning one other sad truth, re those so called ‘health care professionals’.. the way they TALK at YOU... often a kind of arrogannce that puts YOU their ‘patient’ or is it VICTIM?? in YOUR place...
I was from the off absolutely terrified... I do NOT jest when I say that re from the realisation how bad I was with CK levels through the roof... blood pressure all over the place, barely able to stand let alone walk?

BUT the best was yet to come..stuck in an A and E department for over 4 hours after a GP decided my meedical situation was NOT urgent and therefore I could wait around at home for nearly four hours, waiting on non urgent transport to take me there. Another two hours laid out on a trolley in the corridors before admission to the ward..

NO, my story is NOTHING new.. not now...

I’ve fought as hard as I can to come to terms with my health issues... often meeting with some really good helpers, advisors and genuinely what the NHS should be about re tests, scans, results; solutions.
The number of times my test results showed jaw dropping results that were shown to be not just crazy but seldom seen before... leaving me let alone others wondering how my body was able to handle the good, bad and indifferent changes going on.
Crass individuals preaching their text book rhetoric that ie MY blood pressure must be 120/80 or ??? anything else must be abnormal.. UHH.. since when were results overall re me... ANYTHING but NORMAL..
The ONE SIZE fits all.. oh yes... hell if that has not gas lighted me on ocassion... thanks to those so called ‘health care professionals’ who often should KNOW better but... ??

Its NOT what they tell you that you should be worried about.. oh NO... it is what they DON’T tell you or choose NOT to tell you that you should truly be worried about... manipulation?? OR NOT knowing, having the results?? OR the FACTS are revealed later ???

The number of times over the last year that I have informed those so called ‘health care professionals’ of some serious concerns that I have had, am in the midst of coping with; finding solutions to ? that have been proven to be ACCURATE.. Sometimes its like a war zone because of their determination to be the sometimes ‘insidious’ individuals they become leaving one wondering if their own insecurities are what lies, lies being the operative word here... at the heart of it all. ?