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Journal page for NOVEMBER 2023
Tues 28th Nov 2023
Wheeze and chesty cough causing sharp pain that is almost crippling.. Taking some cough suppresant helps IF and when it gets bad to at least guve sine relief, Colder weather is going to be problematic. I am already having to use a lot more tissues !! Some flem. though CLEAR, is more than evident. Sinuses are playing up.. some tightneing of the nasal air ways.. Chest is feeling tighter with I am sure! .... something NOT so good going on especially since the COUGHING has also increased with the throat being compromised adding to the misery.
I am somewhat taking note of the rise in blood pressure BUT a DECREASE in the lower back pain ?? This will be interesting to see how things devcelop especially today as I am going on a rail journey that will involve a fair amount of mobility and all of the issues associated with that !
Hands are swollen.. fingers and tips of .. not so good.
(Sat 25th Nov 2023 Sars antigen test NEGATIVE )
8am Tues 28th Nov 2023
Blood pressure: 177/103/90 - 181/104/96
Mon 27th Nov 2023
Wheeze and chesty cough causing sharp pain that is almost crippling.. Taking some cough suppresant helps IF and when it gets bad to at least guve sine rekuef,
9am Mon 27th Nov 2023
Blood pressure: 181/110/86 - 173/112/86 - 182/108/90
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Sun 26th Nov 2023
Wheeze and chesty cough causing sharp pain that is almost crippling.. Taking some cough suppresant helps IF and when it gets bad to at least guve sine rekuef,
9pm Sun 26th Nov 2023
Blood pressure: 180/107/87 - 181/104/86 - 182/108/94
9am Sun 26th Nov 2023
Blood pressure: 167/102/95 - 157/103/93 - 164/101/94
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Sat 25th Nov 2023 Sars antigen test NEGATIVE
Dermatology consultant appointment today. That was well worth the trip. HOWEVER...
Readers already know the saga re the ‘armpits’ ! Well on further examination two suspicious lumps detected?
What was known was that after taking the first few weeks of the METHOTREXATE, I ended up with swollen glands AND a KIDNEY very PAINFUL ? infection?? Damage?? Diuresis was OK and NO blood other concerns recorded BUT! Thus to me the discovery of two more lumps?? We shall see what follows ..
9pm Sat 25th Nov 2023
Blood pressure: 163/91/105 - 160/88/103 - 162/86/107
9am Sat 25th Nov 2023
Blood pressure: 144/80/97 - 147/86/96 - 159/85/98
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Fri 24th Nov 2023
Notes
Overall the spasm AND CRIPPLINBG ‘SPINAL’ pain even with heat applied to the back (T1 - T12 + L1 - L4) etc PLUS using a cough suppressant (even clearing my throat can cause me a lot of spinal discomfort ) has been a MAJOR problem re interfering with my mobility / motivity.
I have only one objective when it comes to this situation. To negate that pain and discomfort to a level where I can maintain some acceptable level of mobility and motivity.
Chronic fatigue is continuing to be problematic. It makes any urge or desire to do something other than falling asleep; a real challenge.
That 30-40% peripheral body numbness that predominantly affected most of my legs / thighs etc has now spread and is also to be found in the upper torso noticeably the back, shoulders..
My throat is a nuisance. Clearing it of flem et is PAINFUL but NOT re the throat !! The LOWER LUMBAR area is the main source of that almost CRIPPLING PAIN. Sitting forward and gripping both sides of the LOWER / CHEST area eases that by a minor amount. Likewise when coughing etc ! NOT sitting up from a slumped position can be a serious mistake! NOT a good idea! Can almost end up with you choking! I have started to use throat pastilles etc to attempt to keep my throat etc clear. Liksewise a decent cough suppressant. NO CHOICE re this!
9am Fri 24th Nov 2023
Blood pressure: 169/92/105 - 186/97/106 - 173/105/97
4am Fri 24th Nov 2023
Blood pressure: 178/112/99 - 178/110/98
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Thurs 23rd Nov 2023
9am Thurs 23rd Nov 2023
Blood pressure: 153/84/105 - 150/85/104 - 154/86/107
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Wed 22nd Nov 2023
9pm Wed 22nd Nov 2023
Blood pressure: 175/111/88 - 182/105/86 - 177/116/86
9am Wed 22nd Nov 2023
Blood pressure: 169/92/105 - 186/97/106 - 173/105/97
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Tues 21st Nov 2023
Notes: No one should be under any illusions when it comes to accessing your LOCAL GP services (UK) re getting an appointment to see one.. let alone talk to one. It’s quickly become an AI farce. Understandable given the FACT that of course it’s rapidly become NO laughing matter that we ALL are ‘one in a million’ OR should we say MILLIONS.
The ‘one size fits all’ conveyor belt is in full production as they attempt to delay in any way possible those who NEED to access their services from being able to do so without having to traverse the assault course in their way; even moreso if they are handicapped, elderly and !
I have spent the last few weeks taking on the CRIPPLING PAIN from my lower back and the main spine areas.. UPPER and LOWER. The objective to NEGATE that to the extent I can maintain an acceptable level of mobility AND motility.
THAT is ongoing and so far with some of the MEANS at hand.. I have managed to bring it down a little re that CRIPPLING PAIN. NO thanks to my local GP etc who as I have already said is about as easy to get an appointment and as beneficial to me as is a fart in a thunderstorm.
Oh yes, there’s a storm brewing... more on that coming up.
11pm
Blood pressure: 171/114/104 - 177/113/107 - 174/95/97
8am Tues 21st Nov 2023
Blood pressure: 175/100/83 - 173/99/85 - 171/98/91
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Mon 20th Nov 2023
8pm Mon 20th Nov 2023
Blood pressure: 184/98/90 - 173/97/95 - 177/100/87
8am Mon 20th Nov 2023
Blood pressure: 185/106/89 - 182/104/91 - 168/93/95
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Sun 19th Nov 2023
Re 4am and waking to discover some serious issues : on attempting NOTE ATTEMPTING to take my Blood pressure: Not possible. Pulse rate too weak. Dizziness, palpitations, NOT advisable to stand, move around etc. AND some vomitting. Extreme pain to the lower abdomen, gastric discomfort. My solution : NOT to move around, DO NOT attempt to stand but to remain seated, monitor the VERY weak barely noticeable PULSE, cover with blankets to keep warm AND patiently wait for blood pressure to recover. Fluids if possible even if vomitting occurred.
I could have PANICKED. Maybe phoned for an ambulance etc ... believe me.. what was taking place was extreme re overall weakness, shock, vomitting and and ! HOWEVER. IF I had done that? chances are all of those involved directly or indirectly; would have made the entire situation as was, even worse. As for delays in emergency responses?? All of the strain, tension involved in that scnenario?? Moving around, standing et when clearly my blood pressure was dangerously LOW.. ?? Putting extra strain on the clearly compromised ?? Heart?? Gastric bleed??
I survived this time BUT I have NO doubts that NOT calling on emergency services and having others interfering directly or indirectly but relying on my own professional judgement/ intuition / experience.. was what saved me.
1pm Sun 19th Nov 2023
Blood pressure: 168/93/95 - 168/94/94 - 173/98/95
7am Sun 19th Nov 2023
Blood pressure: 181/103/84 - 177/101/84 - 171/106/89
4am Sat 18th Nov 2023
Blood pressure: Not possible. Pulse rate too weak. Dizziness, palpitations, NOT advisable to stand, move around etc. AND some vomitting. Extreme pain to the lower abdomen, gastric discomfort.
Only solution : NOT to move around, stand but to remain seated, cover with blankets to keep warm AND patiently wait for blood pressure to recover. Fluids if possible even if vomitting occurred.
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Sat 18th Nov 2023
Overall the spasm AND CRIPPLINBG ‘SPINAL’ pain even with heat applied to the back (T1 - T12 + L1 - L4) etc PLUS using a cough suppressant (even clearing my throat can cause me a lot of spinal discomfort ) has been a MAJOR problem re interfering with my mobility / motivity.
I have only one objective when it comes to this situation. To negate that pain and discomfort to a level where I can maintain some acceptable level of mobility and motivity.
My throat is a nuisance. Clearing it of flem et is PAINFUL but NOT re the throat !! The LOWER LUMBAR area is the main source of that almost CRIPPLING PAIN. Sitting forward and gripping both sides of the LOWER / CHEST area eases that by a minor amount. Likewise when coughing etc ! NOT sitting up from a slumped position can be a serious mistake! NOT a good idea! Can almost end up with you choking! I have started to use throat pastilles etc to attempt to keep my throat etc clear. Liksewise a decent cough suppressant. NO CHOICE re this!
I am now using laxatives as without them I am in danger of becoming constipated. This is VERY relevant because of the EXTREME sharp stabbing PAIN that limits bowel movement. Until now I have NOT had a problem re this. It is NOT pain re the passing of waste from the bowel. It is the ‘waist’ lower abdomen and back muscles in spasm that affect the movement of the bowel ie the descending colon from expelling waste. Easing that by using a MILD laxative seems to work. I do NOT want to end up with constipation requiring a manual evac / enema etc !
I have managed to reduce the CRIPPLING pain re my T1 - T12 AND L1 -L4 REGIONS and NOTE when I say REGIONS because the main cause of my CRIPPLING PAIN is probably due to MUSCLE INFLAMMATION around those areas impacting on the SPINE.
Reaching or STRETCHING, TWISTING my body could be total agony.. in some instances so painful that you could NOT move nor desire to MOVE... even from sitting to standing .. a nightmare.
I’ve increased the PREDNISOLONE to 5 x 5mgs (25mgs) with Paracetamol 500mgs every 4 hours.. it appears to have some effect in helping to reduce that CRIPPLING pain. Early days and its NOT helping me to reduce the dependence on the Prednisolone! I need to consult my GP re a decent maybe more powerful than Paracetamol NSAID!! However of course trying to do that thnnks to their so called ‘Ask my GP’ online interface that is AI integrated and one of the biggest excuses to make getting an appointment with your GP etc even worse.. just refer you instead to using the other option re online advice etc in the UK OR of course A and E..
9pm Sat 18th Nov 2023
Blood pressure: 171/101/98 - 181/99/93 - 186/98/96
9am Sat 18th Nov 2023
Blood pressure: 156/91/98 - 164/90/98 - 161/91/103
5am Sat 18th Nov 2023
Blood pressure: 168/99/86 - 173/98/84 - 179/96/89
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Fri 17th Nov 2023
Overall the spasm AND CRIPPLINBG ‘SPINAL’ pain even with heat applied to the back (T1 - T12 + L1 - L4) etc PLUS using a cough suppressant (even clearing my throat can cause me a lot of spinal discomfort ) has been a MAJOR problem re interfering with my mobility / motivity.
I have only one objective when it comes to this situation. To negate that pain and discomfort to a level where I can maintain some acceptable level of mobility and motivity.
I have managed to reduce the CRIPPLING pain re my T1 - T12 AND L1 -L4 REGIONS and NOTE when I say REGIONS because the main cause of my CRIPPLING PAIN is probably due to MUSCLE INFLAMMATION around those areas impacting on the SPINE.
Reaching or STRETCHING, TWISTING my body could be total agony.. in some instances so painful that you could NOT move nor desire to MOVE... even from sitting to standing .. a nightmare.
I’ve increased the PREDNISOLONE to 5 x 5mgs (25mgs) with Paracetamol 500mgs every 4 hours.. it appears to have some effect in helping to reduce that CRIPPLING pain. Early days and its NOT helping me to reduce the dependence on the Prednisolone! I need to consult my GP re a decent maybe more powerful than Paracetamol NSAID!! However of course trying to do that thnnks to their so called ‘Ask my GP’ online interface that is AI integrated and one of the biggest excuses to make getting an appointment with your GP etc even worse.. just refer you instead to using the other option re online advice etc in the UK OR of course A and E..
9am Fri 17th Nov 2023
Blood pressure: 170/105/86 - 167/102/85 - 163/108/89
5am Fri 17th Nov 2023
Blood pressure: 174/103/90 - 177/108/91 - 187/107/94
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Thur 16th Nov 2023
Overall the spasm AND CRIPPLINBG ‘SPINAL’ pain even with heat applied to the back (T1 - T12 + L1 - L4) etc PLUS using a cough suppressant (even clearing my throat can cause me a lot of spinal discomfort ) has been a MAJOR problem re interfering with my mobility / motivity.
I have only one objective when it comes to this situation. To negate that pain and discomfort to a level where I can maintain some acceptable level of mobility and motivity.
When it comes to the ‘spine’ one has to be more than aware of the dangers that can cause serious after or side effects re how the body reacts ie in semi paralysis to ?! Remember that my auto immune system is a KILLER because it tends to over react when it comes to attacking from within my body, anything it deems to be a threat??
Adopting a cautious but planned carefully to target the pain receptors etc is one way to gain some relief. HOWEVER currenntly using Prednisolone at 20mgs stat dose daily coupled with Paracetamol 500mgs x 4 doses DAILY does deliver SOME relief BUT... ! I need to reduce that Prednisolone AND find an NSAID such as ? Diclofenac - Brand names: Voltarol, Dicloflex, Diclomax, Econac, Fenactol, Motifene
Coughing is a major problem due to the effect it has on the upper thoracic area that causes severe pain and discomfort
10pm Thur 16th Nov 2023
Blood pressure: 163/98/87 - 163/100/91 - 158/97/92
9am Thur 16th Nov 2023
Blood pressure: 172/104/81 - 171/101/78 - 168/104/87
5am Thur 16th Nov 2023
Blood pressure: 168/104/87 - 162/110/97 - 174/106/89
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Wed 15th Nov 2023
I’ve increased pain killers with little effect, .. Prednisolone (17 mgs) NOW increased to 20mgs !! Plus regular 4 hourly Paracetamol 500mgs ! Overall the spasm AND CRIPPLINBG pain even with heat applied to the back (T1 - T12 + L1 - L4) etc PLUS using a cough suppressant (even clearing my throat can cause me a lot of spinal discomfort )
Seeking an ideal solution BUT I am left with little else at the moment due to the insidious situation directly or indirectly created by those who seek to claim they have the answers to my issues AND where I have found myself having to fight the after effects such as swollen glands, a seriously compromised TRASHED, immune system that left me with KIDNEY damage.. Getting to see your local GP let alone others to consult (*UK )THUS once again, I am left with little alternative but to work on finding PAIN relief that works for me however temporary AND means I am NOT in CRIPPLING pain that is so debilitating.
Spine PAIN is at times quite intense with or without the coughing. Lower spine in particular from L1 to L4 but also it radiates across T1 to T12 and therein lies another increasingly problematic issue.
No doubts that my body is being trashed again AND the NUMBNESS re the 30 to 40% originally a real problem in the LOWER regions.. has and IS noticeably present in the UPPER torso ie the SPINE.. the upper torso! It appears to be mostly PERIPHERAL BUT!! what is going on underneath the skin etc ??
I’ve said it before so let me repeat AGAIN.. IF my body is 30-40% NUMB then the PAIN that I experience is also 30-40% reduced?? IF I am almost incapacitated by it being so extreme to me?? THAT is a major not so good and NOT without serious underlying UNFOLDING damage etc occurring. It is CRIPPLING to the point where standing, moving ie motility AND MOBILITY is seriously compromised.
10pm Wed 15th Nov 2023
Blood pressure: 179/100/89 - 169/97/86 - 173/97/91
8am Wed 15th Nov 2023
Blood pressure: 162/110/97 - 174/106/89 - 179/100/89
5am Wed 15th Nov 2023
Blood pressure: 169/97/86 - 173/97/91 - 175/99/92
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Tues14th Nov 2023
Notes:
Coughing is a major problem due to the effect it has on the upper thoracic area that causes severe pain and discomfort. A gnawing seering pain that is not only abdominal but spinal in context. Mobility is seriously compromised. One of the aspects to all of this is the ‘coughing’ and the desire to ‘cough’? Thus it would make sense to endeavour to control that ‘cough’ where and when possible which I have since tried to do. Somewhat successfully BUT more than aware of the dangers of suppressing it.. I don’t want to encourage a chest infection! Currently I’m on a reduced dose of Prednisolone 3.5 tabs (17 mgs) with an additional Paracetamol of 500mgs. The main flare up occurs on movement or attempting to move around or triggered by the ‘coughing’. The howl and growl chest wise expressed noise wise and more than audible at time; remains.. Gripping the sides of the chest when about to ‘cough’ helps reduce some of the severity of the pain and discomfort that ensues BUT! I am now going to try using a ‘cough suppresant with care; let’s see what follows. I am NOT coughing up any real flem OR blood etc Its mostly a ‘dry cough’.
Spine PAIN is at times quite intense with or without the coughing. Lower spine in particular from L1 to L4 but also it can radiate across T1 to T12 and therein lies another increasingly problematic issue.
No doubts that my body is being trashed again AND the NUMBNESS re the 30 to 40% originally a real problem in the LOWER regions.. has and IS noticeably present in the UPPER torso ie the SPINE.. the upper torso! It appears to be mostly PERIPHERAL BUT!! what is going on underneath the skin etc ??
I’ve said it before so let me repeat AGAIN.. IF my body is 30-40% NUMB then the PAIN that I experience is also 30-40% reduced?? IF I am almost incapacitated by it being so extreme to me?? THAT is a major not so good and NOT without serious underlying UNFOLDING damage etc occurring. It is CRIPPLING at times..
8am Tues14th Nov 2023
Blood pressure: 165/88/94 - 172/92/95 - 171/90/94
5am Tues14th Nov 2023
Blood pressure: 154/90/108 - 180/77/114 - 163/85/110
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Mon 13th Nov 2023 Mon 13th Nov 2023
Hands are swollen AND noticeably COLD ! Circulation has been definitely affected. Some tingling, cracking.
Some distinctive skin patches now becoming visible. Where I had bloods taken over 6 weeks ago ?? There is still the ‘bruising’ mark on the left arm..
My ‘rib cage’ atill feels like its been given a beating .. Painful, especially when attempting to move around. Chest tightness and discomfort with some digestive issues ??? made worse when coughing...
No doubts in my mind.. that my SPINAL column, which has becone increasingly PAINFUL IS compromised.
Mid to lower spine is the worst. Coughing exacebates the discomfort making the whole of the thoracic area, including intercostal ribs etc hypersensitive to the point of almost nauseating.
Sinuses are also problemaic at times, tightening and ending up having to breathe through the mouth ..
Lower legs / calf and ankles are not good re circulation, often resulting in CRAMP that is painful!
8am Mon 13th Nov 2023
Blood pressure: 144/87/103 - 152/91/105 - 136/92/111
5am Mon 13th Nov 2023
Blood pressure: 183/104/99 - 194/105/99 - 207/102/108
Sun 12th Nov 2023
My ‘rib cage’ feels like its been given a beating this morning.. Paindul especially when moving around.
Chest tightness and discomfort with some digestive issues ??? made worse when coughing...
Sinuses are also problemaic at times, tightening and ending up having to breathe through the mouth ..
Lower legs / calf and ankles are not good re circulation, often resulting in CRAMP that is painful!
8am Sun 12th Nov 2023
Blood pressure: 158/87/112 - 143/90/114 - 147/87/113
5am Sun 12th Nov 2023
Blood pressure: 166/97/81 - 170/101/86 - 174/97/91
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Sat 11th Nov 2023
10pm Sat 11th Nov 2023
Blood pressure: 172/95/102 - 173/98/102 - 173/100/104
6pm Sat 11th Nov 2023
Blood pressure: 184/107/88 - 185/108/92 - 191/110/94
10am Sat 11th Nov 2023
Blood pressure: 175/105/90 - 171/105/89 - 170/106/91
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Fri 10th Nov 2023 Fri 10th Nov 2023
Chesty and wheezing is a nuisance. Some deep intense coughing going on.. that seems now to be becoming fairly regular.. NOT good. Sinuses are also problemaic at times, tightening and ending up having to breathe through the mouth ..
Lower legs / calf and ankles are not good re circulation, often resulting in CRAMP that is painful!
8am Fri 10th Nov 2023
Blood pressure: 156/94/107 - 163/95/106 - 160/94/109
5am Fri 10th Nov 2023
Blood pressure: 180/105/83 - 179/105/87 - 176/106/92
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Thurs 9th Nov 2023
Not so good ! A lot of intense coughing and wheezing present. This is definitely getting worse. THAT could be a major problem.. So far, NOT coughing up blood etc BUT that cough ??? As said, deep, intense and a really nasty wheeze to it. Making the back of the throat dry and sore.. Throat pastilles AND ??? cough misture?? Expectorant??
Lega are NOT good ! Lower limbs are problematic with circulation AND cramp issues.
10pm Thurs 9th Nov 2023
Blood pressure: 190/107/91 - 193/105/91 - 189/106/94
6pm Thurs 9th Nov 2023
Blood pressure: 156/90/111 - 154/87/111 - 158/85/114
8am Thurs 9th Nov 2023
Blood pressure: 163/87/98 - 177/87/100 - 170/90/100
5am Thurs 9th Nov 2023
Blood pressure: 185/104/86 - 202/108/91 - 189/106/99
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Wed 8th Nov 2023
Sars Covid 2 Antigen test NEGATIVE
Notes:
Not so good over the last 12 hours with a lot of intense coughing and wheezing present.
I will be doing a Sars covid 2 antigen test (Flowflex nasal) today before heading into the local hospital re bloods tomorrow. Overall more problems health wise in the mix.. My LEFT side (abdo) is very sensitive and giving up a lot of discomfort if I twist my body to the LEFT ! ?? Peripheral NERVE sensitivity re the usual 30- 40% NUMBNESS my body suffers with.. I have a really bad ‘feeling’ that that, is SPREADING upper region AND getting worse?? Will be updating with more info.. today.
10pm Wed 8th Nov 2023
Blood pressure: 142/81/98 - 152/92/97 - 148/83/99
8am Wed 8th Nov 2023
Blood pressure: 145/90/102 - 142/91/106 - 150/93/104
5am Wed 8th Nov 2023
Blood pressure: 159/96/104 - 168/92/93 - 165/95/93
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Tues 7th Nov 2023
Major lower back pain this AM and I mean CRIPPLING pain. Almost unable to walk because of that. Dosed myself up on the Prednisolone 20mgs and gradually over the morning it helped to reduce that CRIPPLING pain to a more acceptable level. I also took 250mgs Paaracetamol. Will continue taking the 250mgs of Paaracetamol for the next 24 hours and tomorrow Wed 8th will start reducing the Prednisolone again ...
Chesty and wheezing is a nuisance. Some deep intense coughing going on.. that seems now to be becoming fairly regular.. NOT good. Sinuses are also problemaic at times. Tightening and ending up having to breathe through the mouth ..
Massive clear out re my accomodation etc .. badly needed after 14 years.. the amount of clutter that in the end and sad to say but true; has little value anymore. As for cardboard boxes.. The Landlord was more than accomodating and respect where respect is due.. deserving of such. As for the guys who cleared out the place.. with me doing what I could.. once again, respect where it is due.
10pm Tues 7th Nov 2023 ?????
Blood pressure: 167/92/96
12pm Tues 7th Nov 2023 ?????
Blood pressure: 124/73/109 - 123/77/114 - 129/75/116
8am Tues 7th Nov 2023
Blood pressure: 181/107/97 - 181/109/99 - 185/107/99
5am Tues 7th Nov 2023
Blood pressure: 165/99/88 - 161/97/87 - 169/97/89
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Mon 6th Nov 2023
A major week with a huge amount going on : more to foillow..
Awaiting on the results from the ‘echocardiogram’ Some much needed blood results including Kidney function tests etc Lower back re Lumbar SPINE will need to be re examined IF the issues I currently am having continue. My overall body peripheral sensitivity is 30 - 40% NUMB thus IF I am in PAIN or experiencing crippling pain ?? SERIOUSLY CRIPPLING PAIN. What however is more of a serious issue is what is taking place whilst that CRIPPLING PAIN is almost killing me.. Definitely LUMBAR region...
Left sided pain ? Kidney?? spasms and definitely NOT good.
Clearing out my residence of all ‘clutter’ which means involving some of the charities for collection etc PLUS having to use some of the other services re community etc.. #landlord ??
Upping my prednisolone to 4mgs daily to cope with pain relief and etc this week.. might increase that IF I feel it is necessary.
10pm Mon 6th Nov 2023
Blood pressure: 169/101/92 - 152/88/104 - 161/91/108
7am Mon 6th Nov 2023
Blood pressure: 185/110/96 - 190/109/101 - 194/105/106
5am Mon 6th Nov 2023
Blood pressure: 175/102/124 - 178/107/125 - 179/102/129
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Sun 5th NOV 2023 2023
Crippling pain Lower back for some hours this AM.. MEGA bad.. finally doped myself up with continuing increased Prednisolone 20mgs dosage AND Paracetamol 500mgs every 4 hours. It did ease back but I had to stop and rest for a good 30 mins out of each following hour.
Very stressful week ahead.. #landlord Remember what I said... some think that if you’re not having someone coming in to your residence daily.. etc wiping your a** that you can’t be seriously ill...
Lower bnck : intense pain. Lumbar spine. Almost impossible to remain upright without crippling back pain.
Will rest easy for an hour after taking an additional 500mgs Paracetamol. IF I am seated the pain is almost none existent BUT standing or moving?? Crippling pain!
Lot of clearing et to do before the end of the day so will ‘dope’ myself up to be able to continue to maintain some mobility. That I suspect will NOT be good for me especially tomorrow etc
The left side *kidney?? is proving to be delivering a lot of discomfort. I have little doubts that there IS damage to that kidney. Diuresis is OK NOT noticing any blood or stones or other paticulates in the urine. No pain on passing urine or burning etc
Under arm.. armpits ? Swollen glands?? Some discomfort present.
Hands (Palms) / fingertips COLD! Definite circulation problems.
Ankles and lower legs re calf and shin areas: NOT good.. am being VERY aware of the previous issues re blood clots etc Noticeable CRAMP issues remain seriously problematic.
Some neck and upper spine / shoulder discomfort AND pain.
Stomach / digetstive system discomfort remains.
Hands are slightly swollen and dehydration is something I am also monitoring as that is apparent. Tough week ahead.
I am now in touch with and have contact with; several organisations as my overall health issues worsen. A lot of breathlessness, wheezing and some more intense ‘dry’ coughing.. no sputum.
Clearing out my residence of all ‘clutter’ which means involving some of the charities for collection etc PLUS having to use some of the other services re community etc..
Upping my prednisolone to 4mgs daily to cope with pain relief and etc this week.. might increase that IF I feel it is necessary.
10pm Sun 5th NOV 2023
Blood pressure: 175/102/124 - 178/107/125 - 179/102/129
6pm Sun 5th NOV 2023
Blood pressure: 158//85/122 - 157/85/121 - 164/84/125
9am Sun 5th NOV 2023
Blood pressure: 174/105/99 - 180/105/97 - 182/104/101
5am Sun 5th NOV 2023
Blood pressure: 194//113/89 - 198/116/94 - 192/111/98
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Sat 4th NOV 2023 2023
10pm Sat 4th NOV 2023
Blood pressure: 177/105/115 - 178/103/115 - 169/107/120
6pm Sat 4th NOV 2023
Blood pressure: 173/101/121 - 177/93/125 - 160/90/133
9am Sat 4th NOV 2023
Blood pressure: 177/107/92 - 171/107/92 - 174/100/88
5am Sat 4th NOV 2023
Blood pressure: 172//104/92 - 179/105/83 - 184/110/91
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Fri 3rd NOV 2023 2023 Fri 3rd NOV 2023 2023
(Taking Alpha Lipoic Acid tabs 100mgs 1 tab daily)
Some neck and upper spine / shoulder discomfort AND pain.
Hands swollen with that distinct COLDNESS to the palms / finger tips etc
Stomach / digetstive system discomfort remains.
Hands are slightly swollen and dehydration is something I am also monitoring as that is apparent.
Tough week ahead. Clearing out my residence of all ‘clutter’ which means involving some of the charities for collection etc PLUS having to use some of the other services re community etc..
Upping my prednisolone to 4mgs daily to cope with pain relief and etc this week.. might increase that IF I feel it is necessary.
10pm Fri 3rd NOV 2023
Blood pressure: 159//93/116 - 165/95/116 - 170/96/116
6pm Fri 3rd NOV 2023
Blood pressure: 176//91/117
9am Fri 3rd NOV 2023
Blood pressure: 160//93/100 - 162/92/99 - 153/96/99
5am Fri 3rd NOV 2023
Blood pressure: 164//107/86 - 166/107/88 - 166/101/89
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Thur 2nd NOV 2023
Notes: Echocardiogram carried out on Wed 1st NOV 2023 (Thankyou J re that ! My mobility was slow, with care but manageable; though by the time I got home?? I was EXHAUSTED. )
Today Thur 2nd NOV 2023 ! Some noticeable indigestion issues. Slight acidiy and regurgitation present. I’ll have to watch that today. No change to my usual breakfast routine.
Hands are slightly swollen and dehydration is something I am also monitoring as that is apparent.
Tough week ahead. Clearing out my residence of all ‘clutter’ which means involving some of the charities for collection etc PLUS having to use some of the other services re community etc..
Upping my prednisolone to 4mgs daily to cope with pain relief and etc this week.. might increase that IF I feel it is necessary.
10pm Thur 2nd NOV 2023
Blood pressure: 139//82/119 - 138/84/120 - 147/86/123
6pm Thur 2nd NOV 2023
Blood pressure: 150//86/125 - 140/82/110 - 143/84/110
2pm Thur 2nd NOV 2023
Blood pressure: 145//85/111
9am Thur 2nd NOV 2023
Blood pressure: 175//94/110 - 168/94/111 - 172/91/112
5am Thur 2nd NOV 2023
Blood pressure: 183//107/89 - 184/103/91 - 174/107/90
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Wed 1st NOV 2023
Notes:
Overall : Some back pain and indictative of ‘kidney pain’..?? Had bloods taken on Thursday the 26th ?? Kidney function test results ??
Urinalysis showing Protein +++
Noticeable wheezing present this morning.... Apnoea continues to be problematic.
Chronic fatigue remains an issue.
Tough week ahead. Clearing out my residence of all ‘clutter’ which means involving some of the charities for collection etc PLUS having to use some of the other services re community etc..
Upping my prednisolone to 4mgs daily to cope with pain relief and etc this week.. might increase that IF I feel it is necessary.
Lets see what transpires this week..
Now taking Alpha Lipoic Acid tabs 100mgs 1 tab daily
In for ‘echocardiogram’ today. Will be interesting to see the results on that! I have been getting some chest pain/discomfort ...
10pm Wed 1st NOV 2023
Blood pressure: 177//105/105 - 179/109/107 - 180/104/110
8am Wed 1st NOV 2023
Blood pressure: 170//108/100 - 166/100/102 - 170/100/106
5am Wed 1st NOV 2023
Blood pressure: 120//80/123 - 129/83/128 - 131/83/133
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