November 2024 Journal page

November 27th 2024

Chest is quite tight. Left side in particular. Uneasy as this complicates my mobility. Overall health and well being is about 45% The rest being problematic.

Differing issues apart from the main ones I have to deal with on a day to day basis.

I am going to lower my Prednisilone from Monday dropping it to 4mgs Daily.

I have Parcetamol 500mgs BUT ONE shot daily -  I don’t like taking higher than that because of the damage to my liver AND kidneys.

Two changes coming up re medications etc

1. Liquid Feroglobin 1 teaspoon approx 5mls ALTERNATE days.

2. Tumeric 600mg capsules ALTERNATE days

Liver, Bile, Kidneys and etc I will be carefully monitoring them.

The forthcoming bloods should be useful for an indication of how things are currently and then after 4 weeks we can compare.

Feroglobin can also lower Blood Pressuire so I need to balance that against the meds I am taking for that. I do NOT want a sudden dramatic drop!

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23rd

Indeopendent blood tests coming up. Also some other tests. My numbness is definitely spreading UPWARDS. A peculiar sensation as though I have a top layer that is numb across certain areas. A kind of skin...

I’m being VERY careful NOT to overdo things. That time where I am wary because too many possible indicators could prove really bad for me.
My jaw is stilling one of the areas I am VERY concerned about.
This year I have managed to NOT end up being at the mercy of taking Methotrexate.

You can of course believe the resentment from some who were proved wrong. The type of individual who is text book, well it’s my middle of the road, tunnel vision method I prescribed and got upset because YOU would NOT do as you were ‘asked’.

Note I did put in ‘asked’..  At least I did prove I am no nodding dog.

A the moment, they are pushing me to hopefully end up at their mercy.. I have no doubts re that. Stuck in hospital eh?? Stroke, losing jaw function, heart attack, blood clotting.. 

NHS bloods taken but I have no faith in any results re those from them. Thus I have private blood testing again coming up again.

I also have some renal testing, more intensive as I am having kidney pain.. Left in particular but also RIGHT side lower back.

Currently I am on Prednisilone 5mgs - a VERY minor dose. almost negligible but I keep getting ‘this is because you are on steroids...’ NO what almost destroyed my Kidneys was the Methotrexate and the FACT I was put onto it too soon..

I’m going, to reduce, the Prednisilone, steadily, until it causes me problems ... not taking enough.

DO remember I have spine problems C6/7 T8 and L4 I also have a growing numbness but the horror re that is a VERY nasty suspicion that my internals are being trashed and I am not knowing it is happening because the pain sensitivity is too low.

BP : 164/80/82   164/83/84     187/106/88

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November 14th 2024

BP : 172/82/91   169/85/93     164/91/110

Fighting the problems with some gut stasis. Instead of my gut rippling to move digestive waste et process waste products the gut has slowed dramatically from the descending bowel into the rectum.

Using some proprietary drugs such as Sennokot et helps but having to use glycerin suppositories can pose problems. Getting them into place for them to work.
They do work AND I am monitoring my bowels. I do not want to end up with constipation which is another not so good aspect.

Overall I’m in control and thats one good aspect BUT I have also noticed that the issues I have with COLDNESS and NUMBNESS. Gradually increasing across the lower abdomen, lower gut / bladder / scrotum. COLD! NUMB! Spreading up from the lower region that is constantly colder than normal. Certain areas such as Thighs,  calf and lower ankles.

Temperatures can go HY PO THERMIC lower than 35 centigrade. LOW at slightly higher than 35c but still abnormally low. Ambient temperatures can be in excess of 28c but make no difference to restoring my lower temps.

A hot water bottle and blanket helps but takes time. Better than nothing!

Chronic Fatigue is a nightmare. I can lose hours but worse I can suddenly realize I am  in another DAY not the one I thought I was in!! As though I have lost a day! Cognitive functions are OK BUT suffer when I hit a Chronic Fatigue scenario.

Also this can cause instability and mobility issues.

Some swelling apparent. Calf and lower legs.

November 11th 2024

A lot of issues that I am having to address re my digestive system, lower bowels (ascending, transverse and descending bowel; rectum and anus.)

Its something that I have been aware of now for some time. CLICK HERE as I expand on this topic AND my, note MY responses, treatments etc

November 4th 2024

Currently :

BP : 147/84/77   138/93/86     147/79/86

I am NOT liking these readings. They are TOO low for ME..

Urinalysis is OK but a very VIBRANT YELLOW. Almost fluorescent!

Protein / Leucocytes ++                   Glucose 0   Blood 0

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November 4th 2024

Some difficulty persists re CHRONIC FATIGUE. A continuing nightmare ! I am monitoring BP as I am interested to know if there is any correlation between the worsening at time effects of this.

Currently :

BP : 168/111/86   171/97/79     169/100/85

Of course it is a known FACT that my Systolic AND Diastolic go UP, when my PULSE rate goes DOWN.. The reverse RE  Systolic AND Diastolic going DOWN when my PULSE rate goes UP.

Generally health and well being is NOT good. I am having to work hard to maintain an equilibrium re both. All of the problems re OCTOBER and earlier are still of concern.

Jaw is bordering on ‘lock jaw’ at times. Stiff. More bone than muscle tissue ? Unpleasant re swallowing and similar. I feel if this gets any worse the chances of me losing jaw action altogether let alone swallowing, mastication and ? is going to be a major nightmare.