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JUNE 2025 journal entries.
22nd June 2025
Managed to stabilise a little, re the worst of the worst = pain, discomfort neck movement remains a major problem. Not only the spine problematic but the hands are swollen.
The spine Cervical ‘collar’ EVERY TIME I move my head, my body.. is seriously compromised. Stepping up the pain killers to 7.5mgs with Gabapentin has helped but in no way is a long term solution.
What is happening is now permanent. I have to change my focus to concentrate on working around as much as I can re the situation that has got worse. Almost inflammatory but I also have another FACT
MY upper body, torso.. lower body are over 50% NUMB.. thus the SERIOUS PAIN and discomfort I am experiencing is far worse than most would be tolerating.
Most would be on MORPHINE.. I am NOT but if things worsen? I am going to reach the stage I will NOT be able to move..without sufficient pain cover,.
The damage to the spine is extensive. I am already experiencing some lower leg after effects re neural pathways and sensory issues.
I am going to end up with some paralysis - that I know is a FACT.. I am already having to scale back mobility and motivity - the after effects are now making my situation far worse than I can accept.
IF I am able to stand and WALK albeit with a lot of care.. my whole torso SPINAL column is delivering some crippling pain and discomfort. IF I rest, OK.. the moment I start to move again? NO.. it has got worse.
21st June 2025
Seriously compromised spinal column.
Crippling pain . . down the spine from the neck.. radiating down the spine and across the shoulder to the arms and hands.
SERIOUSLY CRIPPLING PAIN. .
Prednisilone dose 5mgs - STAT top up dose .. slow VERY slow reduction and that was a VERY SLIGHT reduction in the overall discomfort.
Turning the head.. crunchy, grating and PAINFULLY nauseous ...
The SPINE is compromised but this is the worst it has been for a long time.
Shoulders, spine, neck are almost liken to being ONE LUMP..
Solid, intense discomfort and mobility, motivity is heavily compromised.
I, am now keeping a very careful eye, on how this develops ..
So far I can top up the Prednisilone 5mgs and take some GABAPENTIN 300mgs
I am loathe to do what I should which is to rest up and IF I rest the discomfort becomes less. it is only MOBILITY MOTIVITY that is not good..
Ambient room temperature / hot weather.. is part of the problem.. HEAT appears to exacebate the issue re the pain and discomfort.
162/81/92 - 155/79/87
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My current ECG suggests referral to Cardio specialist.. HENCE I am more than aware of
Myocyte necrosis (death) and regeneration are complex processes that play a crucial role in heart health and disease. Myocyte death, through apoptosis or necrosis, can contribute to the onset and progression of cardiac failure, especially in decompensated hearts according to research published by Oxford Academic. While the adult heart has some regenerative capacity, it often struggles to fully compensate for myocyte loss, leading to a net loss of contractile elements and a decrease in cardiac function.
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I already have and monitor
GCR (3-hydroxy-3-methylglutaryl-coenzyme A reductase) is an enzyme involved in cholesterol biosynthesis and is also a target for autoimmune antibodies. Anti-HMGCR autoantibodies, when present, are strongly associated with immune-mediated necrotizing myopathy (IMNM), a condition characterized by muscle inflammation and damage. This myopathy is often linked to statin use,
The ICD-10 code for Immune-mediated necrotizing myopathy (IMNM) is G72.4, which is also used for inflammatory and immune myopathies not elsewhere classified. This code specifically applies to IMNM, a type of idiopathic inflammatory myopathy (IIM) characterized by muscle weakness and the presence of muscle-specific antibodies, including anti-HMGC
A rare form of idiopathic inflammatory myopathy characterized by acute or subacute, severe, symmetrical, proximal muscle weakness usually associated with muscle-specific antibodies (anti-HMGCR or anti-SRP). Histopathological characteristics include myocyte necrosis and regeneration without significant inflammation, and C5b-9 deposition on non-necrotic myofibers.
5th June 2025
Overall weak. Being careful NOT, to push my limitation to where I can take days to recover afterwards. As previously recorded the majority of those issues remain unchanged.
HOWEVER. There are definite changes taking place that are new issues or have become worse. That affects directly or indirectly my mobility and MOTIVITY. Health and well being, can be compromised at the worst of moments, but I have worked hard to work around some to allow me less of the really bad after effects.
At the moment, my main problems are swollen joints, hands swelling up, puffy and a lot of discomfort.
Optical migraine is occurring more frequently. Mostly short term but I have Cataract type 1 diagnosed by my optician. That I am carefully monitoring and doing what I can to reduce the odds re that NOT in my favour.
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